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My visit to the GI doctor today

August 7, 2012

I visited the GI today for the first time since starting the low-FODMAP diet…

I told him the low-FODMAP diet was working great for me and he basically smiled and said, “that’s great!  Keep at it!”  I was hoping he would test me for fructose malabsorption or lactose intolerance but he said it wasn’t necessary.  He said the best test for those things was eliminating them and seeing you respond.  So, if I’m responding well, then I probably would do best to avoid them in general.

I like how he doesn’t want to pull me through a bunch of tests that cost money and time… but part of me wishes he craved “conclusions” as much as I do.  He said that colleagues don’t find breath tests as reliable as they’d like.  So he didn’t see the use for putting me through one.  I also didn’t realize that he tested me for Celiac slu (?) a year ago via a blood test and I came back negative.  So, that’s great news!

So, if you want to visit your GI to get diagnosed with Lactose or Fructose intolerance, you may– but your doctor may just tell you it’s not necessary if you are already doing well on the low-FODMAP diet.

The Research:

He said he has been very impressed lately with the research coming out about the low FODMAP diet.  He told me that the results have been more impressive for the Low-FODMAP diet helping IBS patients than the research behind the Gluten-Free diet helping Gluten intolerant people!  I had no idea.  I think that’s really saying something.

However, he said there’s not real way to know who the low-FODMAP diet will work for.  That is one of the draw backs to the diet.  They can’t know who to recommend it for and who not to.

I really hope the low-FODMAP diet will start hitting the mainstream soon so that we start seeing low-FODMAP lines of food and snacks!  And I hope more chefs in restaurants become aware of it.  Here’s to hoping!

(Hearing that top IBS specialists at the University of Michigan Hospital are holding forums for colleagues on this diet is very encouraging!  My GI doc went to one just this past Thursday.)

In Conclusion:

In conclusion, I will be following the Low-FODMAP diet as closely as I can for a while.  It works for me.  It’s not always fun, but the occasional cheat seems to be ok, so maybe I can live =)  I also love to cook, which is very helpful.

5 Comments leave one →
  1. Stevie permalink
    August 7, 2012 1:48 am

    I love a doctor that doesn’t want to drag you through a bunch of tests off the bat…but if you really want it you have a right as a patient to say “test me anyway”. It comes in handy to have an actual dx in some situations.

  2. jess permalink
    January 12, 2013 1:21 am

    Hi, I just found your blog from a post on Pinterest and am so glad! I’ve only been on the FODMAP diet for a few weeks and it’s nice to know that other people are going through the same thing. I love your recipes as well. I understand you wanting to know a concrete diagnosis, I’m the same way. My doctor said the Hydrogen breath test is unreliable and that given my symtoms and family history it’s likely I have Fructose Malabsorption. I just started a blog to help cope with everything- 🙂

  3. Karen permalink
    September 29, 2013 11:08 pm

    Hello, Enjoying your blog posts. After many years of suffering with GI symptoms and a IBS diagnosis with no remedy for feeling better I finally found a doc who tested me for the very first time. I’m glad I was tested because I came up positive for fructose malabsorption, AND SIBO which is small intestine bacterial overgrowth. I needed the low-FODMAP diet and treatment for SIBO. By the way, symptoms are identical for both. I had the double whammy and was very sick by the time I got to this doc. What he didn’t have was updated, accurate info on the low-FODMAP diet. After months of googling and finding lots of inaccurate info, I finally found a nutritionist trained by the Aussie team in Boston. Her name is Kate Scarlata and you will find lots of great updated info and recipes on her website and blog. 🙂

    • Marcy permalink
      October 24, 2013 10:47 pm

      Karen, I have SIBO as well. What is your treatment plan? Did they want you to do the LOW FODMAP diet while on treatment or wait till after the meds (antibiotic). What about eating greek yogurt while on antibiotics? Seems if you do the diet and yogurt (Or probiotics) while on antibiotics it would put the bacteria (SIBO) in “hiding” and wouldn’t kill them off. Just curious what your GI advised. I also found Kate’s site, very helpful. Some of the LOWFODMAP stuff goes against what is best to fight SIBO though and keep it at bay. Hope you are doing better!

  4. Karen permalink
    February 4, 2014 8:18 pm

    Hi Marcy, I was just notified of your post today. Sorry for the delay in responding. After dx of FM I started the low-FODMAP diet with terrible results because my GI didn’t have current info and it was challenging to find it online. I went several months before the GI did the breath test for SIBO which was positive. Test for lactose intolorance was negative, BUT dairy effects me negatively so I’m using lactose free products. I did the Rafaximin antibiotic with good results. Eventually, I located Kate Scarlata and scheduled a consultation and traveled from CT to MA to meet with her. BINGO! Exactly what I needed….she had been to the RF training in AU and had all the latest greatest low FODMAP research and testing info. The SIBO has reared it’s ugly head several times and I’ve need tx. I’ve been doing well with the diet and haven’t needed tx since June, 2013. That means that the diet is working and the SIBO is at bay….I hope I don’t jinx myself!!

    I am not taking any probiotics. It’s hard for me to get lactose free yogurt so I don’t often have it. I can not tolerate regular Greek yogurt, cows milk, sour cream and any soft cheeses. Hard cheese has less lactose, FYI and I do pretty well with it in small quantities. I use lactose-free milk. Almond milk is good also. The newest research from AU modified some foods and food quantities so make sure you have them. The one thing I found out over time is that FODMAP consumption is cumulative so beware of allowable portion sizes and meal times so as not to overload…even on safe foods. It’s confusing, but it’s worth it to stick with it and keep learning as you go. I feel so much better as long as I’m following the strict diet.

    Best wishes to you for better GI health.

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